Perseverance

We have returned from our adventure in the great outdoors.

Literally, there was no phone service.

The directions read like this : turn left at McDonald’s, go 5 miles. Turn left at the furniture store. At second right, follow the road to the T. At the T, go left and stay on the left side of the fork in the road. At the Taxidermist, turn left and follow the dirt road 2 miles. Cabin on right.

Yep (cue banjo music).

There was also lots of this:
“She touched me!” “She doesn’t like me!” “I don’t wanna…” “STOP!” “Do NOT hang over the porch railing!” “Wash your hands!” “Uh-huh” “Nuh-uh” “(insert copious amounts of tears here)” “It’s a walking stick, not a lightsaber!” “Wear bug spray!” “Go ahead…” “You want to do WHAT?” “Be nice to the little ones!”

We also managed to fit in some horseback riding, (the boys went) whitewater rafting, fishing, shopping, and just relaxing.

However, there was more to it than just that.

I learned something really important.

Jack is almost 4. He wanted to do what the other kids were doing. Sometimes that was OK, and other times it just wasn’t possible.

He only asked for one thing the whole time we were there (well, besides the diggers and a bunny).

He said he wanted to “Cwime Moufain” (climb mountain).

We went to Carter’s Lake dam, and he wanted to climb the rocks. So, we climbed the rocks. Granted, it was spur of the moment and I was wearing flip flops, but we managed! ;)

We went to the highest waterfall east of the Mississippi river…and he got to “hike” in the woods.

I looked a lot at the rocks in the stream behind our cabin. Over time, water washes over them creating different shapes and sizes. Some get beautiful and smooth while others get sharp and jagged, ready to slice through an unsuspecting foot wading through.

That’s sort of how I perceive Jack’s life. It’s going to be difficult. He is going to be treated harshly by some, gently by others. The water is going to run over his soul, and he (and possibly I) will run the risk of becoming jagged and jaded. Jealousy could haunt the darkest corners of his heart. And if it did, I would always wonder, “What if I had taken him to do the things that he thought he couldn’t do?”

I will do whatever it takes to protect my children…to guarantee that their hearts stay open, accepting, and kind. Until he is too big for me to handle, I will strap him on my back and show him the world that he yearns to see!

In the special needs world, they sometimes use the word “perseverance” to talk about obsessive behaviors. Webster defines the same word as “persistent determination.” I love the word. 2 completely different connotations depending on how you look at the coin. So much like the life we lead…the choices we make… the paths we follow.

Perseverance.

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24 Responses to “Perseverance”

  • Knowledge Safari:

    Looks like a fun time — no phone service and all! Great post.

    [Reply]

  • mandibone:

    It is post like this one is why I am voting everyday for your blog.

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  • butwhymommy:

    Glad you had a fun trip. I'm glad Jack got to climb his mountain.

    [Reply]

  • Kakunaa:

    And this is why you got nominated. Because you are AMAZING. As always, I am floored by your insight. Fabulous word. Love n stuff.

    [Reply]

  • misty w.:

    love the post and the picture, heather…

    [Reply]

  • Fran:

    Great post my friend, I like perseverance too. With the mean of determination. Love, Fran

    [Reply]

  • Anonymous:

    OH Heather – you are amazing- I love how you can take the things you see in the world around you wherever you are – even in 'Deliverance Country' and learn from them and share your insights from them. . .what a blessing for you and also for those of us who read your blog, vote for your blog (with and without harrassment) and keep you close in prayers. Hugs and hope, Diane

    [Reply]

  • April:

    Looks like you had a great time!

    [Reply]

  • Karen:

    Wow…beautiful and true.
    We had an eye-openning experience this weekend too…social stuff that made me cry for him…
    You are an amazing woman, Heather and Jack will see this and get his strength from watching you and how you leap over hurdles in life. Yes, he will have lots of disappointments but as you showed him, there are ways to allow him to experience what he desires….it just takes a little creativity and a lot of love.
    *HUGS*

    [Reply]

  • DaisyGal:

    I want to print this post and hang it up, to remind me how to STICK WITH THINGS…

    the way you wrote about your son and yourself, tears welling in my eyes, aobut how you are GOOD MOM, A wonderful person, a woman who won't give up.

    Inspring and beautiful. :)

    [Reply]

  • Alex:

    Beautiful post – you are one seriously amazing mom!

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  • Emma:

    It looks completely amazing and with perseverance from jack and yourself he will always be more than perfect xxx

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  • jrs:

    You are amazing! Beautiful pictures. congrats on your "inspiring blog" nomination–you deserve it.

    [Reply]

  • ParkerMama:

    Hey. I was wondering if you would like to come and write with us over at 5MFSN? :)

    Tammy and Parker
    http://www.prayingforparker.com
    http://www.5minutesforspecialneeds.com
    @ParkerMama on Twitter

    [Reply]

  • StorytellERdoc:

    What an amazing post, Heather. Your family has been blessed by your presence. Jack is one hell of a lucky kid!

    Glad to hear your trip was inspiring…

    Jim

    [Reply]

  • Rae:

    wow, looks like a great vacation! love the pictures and the post! inspiring as always!

    carry on!
    corey

    [Reply]

  • Dolores:

    After ten long years of therapist and special ED classes Christopher was mainstreamed, well, you know how my 09 went I was hardly apart of it… With taking care of my own health, my son was bullied… He was called all kinds of evil hateful names… I rejoiced in the fact that, we had come so far that my son was finally "normal" yet… Did I do more damage? Was he better off? We special needs mommies go through all kinds of trials and tribulations… We speak for our children who don't speak for themselves(my daughter) and often times we have to let the ugly out! Our quest is to mold these children from into everything we know they can be…. I was once told God doesn't just give his special needs babies to just anybody!!! He chooses amazing parents… And sometimes just people(in my case, until Jas came along). I love reading your post's…

    [Reply]

  • Michelle:

    "It's going to be difficult. He is going to be treated harshly by some, gently by others."

    The paragraph about how Jack will be treated literally took my breath way. I experienced the harsh side the other day when a kid with problems of his own looked across the OT waiting room at my son and said, "He looks funny." Twice. My son didn't hear either time, but I did. So as they get older, I hope both our sons will find the resilience to persevere.

    -Michelle
    http://griefinterrupted.com

    [Reply]

  • Sara:

    What a beautiful post. What a beautiful family.

    (from the creme)

    [Reply]

    Heather Reply:

    Hi Sara (from the creme–that made me laugh)

    Thank you for saying my family is beautiful…I agree! ;)

    [Reply]

    Heather Reply:

    Hi Sara (from the creme–that made me laugh)

    Thank you for saying my family is beautiful…I agree! ;)

    [Reply]

  • What a beautiful post. I truly hope that the waters make your smooth instead of jagged, that they are cool and calming instead of harsh and turbulent, that they refresh instead of tire you, that they nourish life instead of drown it out. I cannot imagine the challenges that you and your son face, but you seem to be more open to them than most. Thank you for sharing this outing with all of us, we are the better for it.

    Creme de la Creme #125
    Creme de la Creme 2010 Iron Commenter Attempt
    http://esperanzasays.wordpress.com/iron-clad-creme-de-la-creme-commenter/

    [Reply]

    Heather Reply:

    Good for you doing the Iron Commenter bit…I did it once and it nearly killed me! ;) Thanks for stopping by!

    [Reply]

    Heather Reply:

    Good for you doing the Iron Commenter bit…I did it once and it nearly killed me! ;) Thanks for stopping by!

    [Reply]

  • Gail:

    I’m here from the Creme (a little late, but still here). Thanks for your post.

    [Reply]

    Heather Reply:

    HI Gail! Thanks for stopping by! there’s no such thing as late!

    [Reply]

    Heather Reply:

    HI Gail! Thanks for stopping by! there’s no such thing as late!

    [Reply]

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